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求助醒目——谁有好点的英文BB论坛网址,就像我们论坛一样名气大、资料全、客观公正~
谢谢~~~~~~~~~
在网上国家皮肤病研究机构http://www.niams.nih.gov/health_info/vitiligo/找了点资料,自己摘录和翻译了两段:
Fortunately, there areseveral strategies to help people cope with vitiligo. Also, varioustreatments—discussed in the next section—can minimize, camouflage, or, in somecases, even eliminate white patches. First, it is important to find a doctorwho is knowledgeable about the disorder and takes it seriously. The doctorshould also be a good listener and be able to provide emotional support. Youmust let your doctor know if you are feeling depressed, because doctors andother mental health professionals can help people deal with depression. Youshould also learn as much as possible about the disorder and treatment choicesso that you can participate in making important decisi** about your medicalcare.
[大意翻译]: 幸运的是,现在有很多帮着人们治疗BB的策略,可以减轻或消除白斑。首先,找一个具有专业知识的医生很重要。医生也是一位好的聆听者和提供心理支撑。你必须让你的医生了解你的症状,因为这样医生或专业人士才能帮你对症下药。你也应该敬可能多的学习和掌握治疗的选择,这样你可以在你对你自己的治疗方案作出重要的选择。
What Are theSymptoms of Vitiligo?
People who develop vitiligo usuallyfirst notice white patches (depigmentation) on their skin. These patches aremore commonly found on sun-exposed areas of the body, including the hands,feet, arms, face, and lips. Other common areas for white patches to appear arethe armpits and groin and around the mouth, eyes, nostrils, navel, genitals,and rectum.
Vitiligo generally appears in one ofthree patterns:
· focal pattern—depigmentationlimited to one or only a few areas
· segmental pattern—depigmentedpatches that develop on one side of the body only
· generalized pattern—the most commonpattern. Depigmentation occurs symmetrically on both sides of the body.
In addition to white patches on theskin, people with vitiligo may have premature graying of the scalp hair,eyelashes, eyebrows, and beard. People with dark skin may notice a loss ofcolor inside their mouths.
[大意翻译]: BB的症状是什么呢?
人们发现BB一般是发现了皮肤上的白色斑块,这些斑块在身体受到太阳照射后会显得特别明显,包括:手臂、腿、手掌、脸、嘴唇。另外这些白斑还会出现在嘴巴、眼睛、鼻孔。。。。。。周围
BB主要有下面三种类型: *局限型——局限在身体的某一个部位或少数几个部位 *节段型——只沿着身体的一侧发展 *寻常型——最常见和普通的类型:在身体的两侧都有发展
另外,白斑还可能让患者的头发、眉毛、眼睫毛等变灰变白。皮肤黑的人还会表现为他们口腔内部的颜色脱失
这是推荐的几个比较正规的机构和网站:
Where Can People Find More Information About Vitiligo?
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) 国家皮肤病和虾米?研究院
Information Clearinghouse
National Institutes of Health
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484
Toll Free: 877-22-NIAMS (877-226-4267)
TTY: 301-565-2966
Fax: 301-718-6366
Email: NIAMSinfo@mail.nih.gov
Website: http://www.niams.nih.gov
Other Resources
American Academy of Dermatology (AAD) 美国虾米?学院
Web site: http://www.aad.org
American Vitiligo Research Foundation 美国白癜风研究基金
Web site: http://www.avrf.org
National Vitiligo Foundation, Inc. (NVF) 国家白癜风研究基金
Web site: http://www.nvfi.org
Vitiligo Support International Inc. 国际白癜风服务机构
Web site: http://www.vitiligosupport.org
U.S. Food and Drug Administration
Toll Free: 888–INFO–FDA (888–463–6332)
Website: http://www.fda.gov/
For updates and questi** about statistics, please contact
Centers for Disease Control and Prevention's National Center for Health Statistics 国家健康预防与控制中心
Web site: http://www.cdc.gov/nchs
This publication is not copyrighted. Readers are encouraged to duplicate and distribute as many copies as needed.
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