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[白白闲谈] Le Poole教授关于白白研究的会议纪要!

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大学一年级

发表于 2015-4-16 13:35:37 | 显示全部楼层 |阅读模式

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To anyone with an interest in the latest and greatestin vitiligo research and treatment

What?
The PanAmerican Society of Pigment Cell Research (PASPCR) will be offering aunique meeting opportunity this year. In advance of their 2015 scientific Conference:“Advances In Vitiligo Research And Care,”the PASPCR in collaboration with theVitiligo Working Group and Vitiligo Support International areoffering a “Vitiligo Pre-Meeting” tobring vitiligo patients, their doctors, and some people who specialize invitiligo research together in one place.

When and where?
The Vitiligo Pre-Meeting will be held at the Doubletree Hotel inOrange, CA, on Sunday September 27, 2015, with an optional dinner/social theevening before, on Saturday September 26.
Conference day will begin with a breakfast at 8 a.m., and will conclude ataround 2:00 that afternoon
.

Who are the Speakers?
The committee will have quite a few speakers to choose frombut will not select the final program untilall of the speaker presentati** have been submitted. We will update theprogram as we go along, but everyone signing this invitation letter below will forsure be there.

Can patients get together for dinner?
If you are coming from out of town and are able to arrive by 7:00 p.m.on Saturday (9/26), we encourage you to participate in a vitiligo social dinnerat Dave and Busters, which is within walking distance from the hotel.
Note that food and drink expenses forthis social event are not covered by the conference registration fees,however we must have an accurate headcount for the restaurant reservation, sothose wishing to participate need to indicate their attendance on theconference registration.

How much does the conference cost?
Thanks in part to conference grants offered by the Vitiligo WorkingGroup and UC Irvine Dermatology to offset meeting costs, registration is only$80.00.
The $80 fee covers the meeting facility, breakfast, and lunch, aswell as presentati** and forum discussion by experts in vitiligo research andtreatment.
Seating is limited, so wesuggest that you plan ahead and sign up as soon as possible

How do I register for the meeting?
You canregister and pay online.
You will noticethat the website also includes scientific information about skin pigmentation, don’tworry, you are in the right place!
First go to the meeting program page on the website http://paspcr.org/paspcr2015/vitiligo-pre-meeting.phpFrom the left menu- select ‘Meeting Registration.’
From the middleof the page, under “StandardRegistration,” select registrationform>>
Select thefirst option “Vitiligo Pre-Meeting”,
If you wouldlike to reserve a space to attend the Saturday evening social and dinner- thenyou need to also select the secondoption “Vitiligo social self pay.”
Complete the form (patientsmay disregard “Institution” and “Department” fields)
At the bottom,select ‘send registration.’  
Once yourregistration is successfully submitted you will receive an email confirmation.
Payment:
Once the payment section has been completed/submitted,your online registration will be complete.
If you are not automaticallydirected to the Payment page, then:
from the Meeting Registration page, under “Standard Registration,” select creditcard/paypal>>
Select “Registration vitiligo pre-meeting” (US$ 80)
Once you have completed the paymentprocess your seat will be reserved!
Each attendee must sign and date a ConferenceLiability Waiver and Photo release upon arrival.

How do I arrange my travel and overnight stay?
To reserve ahotel room at the discounted meeting rate,from the menu on the left, select Accommodation.
This page alsoincludes information regarding specialconference rates for airport shuttles.
If you are flying in, you can choose from multipleairports
·        John Wayne Airport, OrangeCounty (SNA)
·        Long Beach Airport (LGB)
·        Ontario International (ONT)
·        Los Angeles InternationalAirport (LAX)
Long Beach andJohn Wayne airports are the two closest to the Hotel (around 14 miles)
Long Beach is to the west; John Wayne is to the south.
ONT is a coupleof miles closer than LAX, (30 miles, and 33 miles) but LAX has many moreairlines and flights, as well as more airport transfer opti**  
If you arecoming by car, hotel parking will be $7.
Is there anything fun to doin Orange, CA if I have some extra time?
Disneyland isjust 2 miles away, and Doubletree offers FreeShuttle service to the park. You can also order and print online Disneylandtickets from the Doubletree website   Doubletree- Disney Tickets=
You can go shopping at the Outlets at Orange withmore than 100 restaurants and shops, just next to the hotel. Otherwise, take acar or public transportation to enjoy the coastline with beautiful beaches(remember to take sunscreen), or to Universal Studios (within 40 miles).
From thisDoubletree page, if you scroll down you will learn more about other familyfriendly activities in the area - http://www.doubletreeanaheimhotel.com/anaheim-area-information

How can I share informationabout this meeting with others?
A vitiligo conference flyer is attached. Feel free to share it tohelp us reach anyone who may be interested in attending. Doctors who would liketo get educational credit for attending our vitiligo meeting can sign up for 4hours of CME credit at the meeting.
The meeting is now open for registration and abstract submission. Welook forward to seeing you there!

Questi**?
For questi**that are not answered on the website, contact the vitiligo pre-meetingorganizing team:
Dr. CarolineLe Poole of Loyola University Chicago in Maywood,IL at ilepool@luc.edu on behalf of thePASPCR
Dr. AnandGanesan of UC Irvine in Orange, CA at  aganesan@uci.edu on behalf of the localPASPCR conference organizing committee
Dr. JohnHarris of the University of Massachusetts inWorcester, MA at  John.Harris@umassmed.eduon behalf of the Vitiligo Working Group
JackieGardner at jgardner@vitiligosupport.org onbehalf of Vitiligo Support International, Inc
Dr. PearlGrimes of the Vitiligo & Pigmentation Instituteof Southern Califormia on Los Angeles, CA at pegrimesmd@aol.comas a local vitiligo pre-meeting host and
Dr. AmitPandya of UTSouthwestern in Dallas, TX at Amit.Pandya@UTSouthwestern.eduas the scientific program chair.

We look forwardto meeting with you in September!

如果您认可本论坛,欢迎告诉身边的病友,让更多的朋友来到这里,你+我=手拉手!

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超级版主

发表于 2015-4-16 14:09:24 | 显示全部楼层
英语不好是硬伤,麻烦有空的时候帮忙大体意思翻译成中文,辛苦了!

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初中一年级

发表于 2015-4-16 14:12:46 | 显示全部楼层
就是啊,有大侠给翻译一下呗。

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初中一年级

发表于 2015-4-16 16:06:16 | 显示全部楼层
有兴趣的人提供最新和greatestin白癜风的研究和治疗


什么?

泛美高速色素细胞研究协会(PASPCR)将提供能今年会议的机会。提前2015年科学会议:“白癜风研究的进展和关心的,”PASPCR与theVitiligo合作工作组和白癜风支持国际areoffering“白癜风”预备带白癜风患者,医生,有些人专门invitiligo研究在一个地方。



何时何地?

白癜风预备将举行的开业酒店inOrange,CA,周日9月27日,2015年,一个可选的晚餐/社会时,9月26日星期六。

天会议将在8点早餐开始。,并将结论ataround那天下午两点。


演讲者是谁?

委员会将有相当多的人选择frombut不会选择的最终程序untilall议长presentati * *已经提交。我们将会更新这个项目,但每个人都签字下面这个邀请函将forsure存在。


病人能一起吃晚饭吗?

如果你是来自出城,晚上7:00能够到达。周六(9/26),我们鼓励你参与白癜风社会dinnerat戴夫和破坏者,从酒店步行距离内。

注意,食品和饮料费用为社交活动不是由会议注册费,但是我们必须有一个准确的员工餐厅预订,sothose希望参与需要表明他们出席会议登记。


会议费用多少钱?

由于会议提供的赠款白癜风WorkingGroup和加州大学欧文皮肤病,以抵消会议成本,注册只有80.00美元。

80美元的费用包括会议设施,早餐,午餐,以及presentati * *和论坛讨论andtreatment白癜风专家研究。

座位有限,所以wesuggest你提前计划,尽快报名


我怎么注册这个会议吗?

你canregister和在线支付。

你会noticethat网站还包括科学信息对皮肤色素沉着,并'tworry,你是在正确的地方!

第一次去会议程序页面在网站http://paspcr.org/paspcr2015/vitiligo-pre-meeting.phpFrom左边菜单——选择“会议注册。”

从页面,并在“StandardRegistration”,选择registrationform > >

选择第一个选项“白癜风预备”,

如果你想多预定一个空间来参加星期六晚上的社会和晚餐——你还需要选择secondoption的“白癜风社会自我。”

完整的表单(三分之一无视“机构”和“部门”字段)

在底部,选择“发送注册。”

一旦yourregistration成功提交您将收到一封电子邮件确认。

付款:

一旦付款部分已经完成/提交,你的网上报名完成。

如果你不是automaticallydirected到付款页面,然后:

从会议注册页面,在“标准登记”,选择信用卡/贝宝> >

选择“注册白癜风预备”(80美元)

一旦你已经完成了paymentprocess座位将保留!

每一个与会者都必须签署和日期ConferenceLiability豁免和照片发布在到达。


我如何安排我的旅行和住宿吗?

一个旅店预定房间打折会议,从左边的菜单,选择住宿。

这个页面alsoincludes信息specialconference利率机场班车。

如果你飞,你可以选择从multipleairports

·约翰韦恩机场,OrangeCounty(SNA)

·长滩机场(激光)

·安大略国际(安大略省)

洛杉矶·InternationalAirport(松散)

长滩andJohn韦恩机场最近的两个酒店(大约14英里)

长滩是西方;约翰·韦恩是南方。

安大略省是coupleof英里比松懈,(30英里,33英里)但是有许多moreairlines松懈和航班,以及更多机场转移opti * *

如果你arecoming车、酒店停车场将7美元。

有什么有趣doin橙色,如果我有一些额外的时间吗?

迪斯尼乐园对于2英里之外,逸林酒店提供FreeShuttle服务去公园。你也可以在网上订购和打印Disneylandtickets逸林酒店网站逸林酒店-迪斯尼门票=

你可以去购物在网点橙色更多超过100的饭店和商店,就在酒店旁边。否则,acar或公共交通与美丽的海滩享受海岸线(记得带上防晒霜),或环球影城(在40英里)。

从thisDoubletree页面,如果你向下滚动,你会了解更多关于其他familyfriendly活动在该地区——http://www.doubletreeanaheimhotel.com/anaheim-area-information


我怎么能与别人分享这个会议?

白癜风会上传单附呈。请它帮助我们达到自由分享的人有兴趣参加。医生想让教育信贷出席我们的白癜风会议可以报名参加4小时的CME信贷会议。

会议现在开放了注册和抽象的提交。Welook期待见到你!



Questi * * ?

questi * *不回答的网站,联系白癜风pre-meetingorganizing团队:

CarolineLe Poole芝加哥洛约拉大学的梅伍德博士代表thePASPCR ilepool@luc.edu

加州大学欧文分校的博士AnandGanesan橙色,CA aganesan@uci.edu代表localPASPCR会议组委会

马萨诸塞大学inWorcester JohnHarris博士,马英九在John.Harris@umassmed.eduon白癜风工作组的代表

JackieGardner jgardner@vitiligosupport.org onbehalf白癜风支持国际公司

白癜风的PearlGrimes博士&色素协会Califormia在洛杉矶南部,当地白癜风预备主机和CA pegrimesmd@aol.comas

UTSouthwestern AmitPandya博士在达拉斯,TX Amit.Pandya@UTSouthwestern.eduas科学计划的椅子上。
我们9月看身向前会见你!

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高中二年级

发表于 2015-4-18 02:21:27 | 显示全部楼层
这个是什么意思啊  怎么没有回复学术研究的成果....

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荣誉会员

发表于 2015-4-20 05:25:22 | 显示全部楼层
这是9月26号会议的通知,不是会议纪要。离我之前住的城市很近,可惜离开了,不然一定会去。
New year, new attitude. It' s a little thing, but makes a big difference. 新年,新态度。下巴上扬只是小事一件,却可以改变你的世界。

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QQ
发表于 2015-4-20 12:56:53 来自手机 | 显示全部楼层
力顶

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QQ
发表于 2015-4-20 12:57:09 来自手机 | 显示全部楼层
力顶

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初中二年级

发表于 2015-6-24 16:34:18 | 显示全部楼层
楼主确定9月28日会过去吗?

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大学一年级

 楼主| 发表于 2015-6-26 13:16:06 | 显示全部楼层
杨也 发表于 2015-6-24 16:34
楼主确定9月28日会过去吗?

是的,@亦宁 会发帖帮忙收集一下问题,我尽量都带回给大家

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高中三年级

发表于 2015-6-26 13:49:31 来自手机 | 显示全部楼层
Greatniulei 发表于 2015-6-26 13:16
是的,@亦宁 会发帖帮忙收集一下问题,我尽量都带回给大家

问题好多!我想大家最关心的是这个药效果如何?何时能给患者使用!关于白白,目前国际上有专门研究的机构吗?专家预计什么时候能真正攻克啊?在中国很多患者都在期待这一天

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高中三年级

发表于 2015-6-26 13:59:57 来自手机 | 显示全部楼层
Greatniulei 发表于 2015-6-26 13:16
是的,@亦宁 会发帖帮忙收集一下问题,我尽量都带回给大家

是专门白白研讨会,我想去的都是这方面的专家

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大学一年级

 楼主| 发表于 2015-6-26 17:32:39 | 显示全部楼层
不快乐 发表于 2015-6-26 13:49
问题好多!我想大家最关心的是这个药效果如何?何时能给患者使用!关于白白,目前国际上有专门研究的机构 ...

药物再我另外的帖子已经有她的邮件了,她预计两年内能做临床试验,我目前了解的信息没有看到美国有专门研究治疗白白的机构,但是美国也有一个类似我们论坛的组织在支持美国病人的治疗,这次去我也会见到他们相关的人。实话实讲在美国的时间肯定会非常有限,希望大家要提的问题都是些有价值的,我们能够带回实际答案的,谢谢理解

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高中二年级

发表于 2015-6-26 17:37:40 | 显示全部楼层

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高中三年级

发表于 2015-6-26 19:02:33 来自手机 | 显示全部楼层
Greatniulei 发表于 2015-6-26 17:32
药物再我另外的帖子已经有她的邮件了,她预计两年内能做临床试验,我目前了解的信息没有看到美国有专门研 ...

楼主辛苦了,因为我们了解的信息太有限,所以不知道问什么样的问题才会不失礼,但内心急切盼望的是希望医学能攻克这个顽疾,因为害怕随着时间,孩子会越来越多!在中国很多家庭为了治疗白白花费的钱不比得癌症的少,虽然病急乱投医,但是作为父母只要能治好,都愿意一试!
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